9/30 - Jamie is driving; New hand prosthetic company; ACL; Jamie's Birthday!

I can’t believe that its almost October. So much to do in the coming months.

First, we’re planning two benefits for Jamie in the next few months. The first one will be on November 7th at Liar’s Den, on McKinney Ave in Dallas. It’ll be during the day and a more casual affair than the one in February in Austin. Think kegs of beer, some fun music and general carousing. There will be a silent auction, beer pong/flip cup… all-in-all, it’ll be a wonderful time. $20 suggested donation, but I’ll have more instructions on the buy-ins for the competition in the near future. The other, bigger event (more of a gala) will be on February 27th at St. Michael’s in Austin. Think emcee, sport coats and good food.

So, onto the updates you’re looking for... but before that, a magic trick from Jamie:




... Nice...

1) Jamie’s back on the road! Bob, Jamie’s OT, got her back into a car for the first time since November 2008. Jamie and Bob drove from St. David’s to our old house on 48 1/2 street to the Hancock Center parking lot, and back to our current house in Austin. For those of you not familiar with Austin, that’s about 2 miles, total. She drove using hand pedals/brakes that are located next to the steering wheel. According to Bob, it wasn’t too hard for her to drive. This was a week or so ago, and Jamie hasn’t driven since, but it’s good to know that Jamie can still drive well… or as well as she could drive before… which really wasn’t that well, but you get the point. We’ve been discussing what kind of car to get Jamie when she’s fully able to drive again. Something economical, with good trunk space for the assistive technology she’ll be reliant on. I’m not good with cars or else I would start listing… I remember that the Honda Element was one of the cars discussed, but that’s about all I can think of for now. Here's a video (with bad sound) of everyone talking about Jamie driving... Sake is there too:



2) One of the biggest developments in the last few weeks is our new relationship with Advanced Arm Dynamics. We were introduced to Advanced Arm Dynamics (AAD) through one of our new doctors, Dr. Sharma. Dr. Sharma is a hand doctor, like Dr. Boutros. (Interesting note, Dr. Sharma was partnered with the plastic surgeon who, on December 6, recommended that we amputate Jamie’s arms at the wrist and her legs above or at the knee… he isn’t partnered with that doctor anymore). Dr. Sharma is wonderful and is happy with the work performed by Dr. Boutros. He isn’t planning on too many more surgical procedures on Jamie, if any, in the future. OK, there will be some, but nothing too extensive. Also, we’re glad to be with him because he is so close and has this good relationship with AAD. So, I missed all of the early appointments with Dr. Sharma, so I can’t tell you too much about what went on there, but at one of those meetings, he recommended that we look at AAD… then he set up a meeting with one of AAD’s reps, who was driving down from Dallas. Well, we were BLOWN AWAY by the things we were shown by Bernie, the rep for AAD. Bernie, as you can tell in the videos, is an amputee; he became an amputee after being a victim of a random drive-by shooting. His hand was messed up badly… he showed us pictures of it. Here's some video from that meeting:


As you’ll see on the video, the technology that AAD is developing is amazing. AAD is the only company in the country (world?) that works exclusively on upper extremity prosthetics , and they have the results to prove it. The demo model that he showed to me, mom, Jamie and two other amputees that were in the same meeting is representative of the kind of prosthetic Jamie will be outfitted with. The prosthetic will consist of a glove or a socket that Jamie’s hand will fit into. On the inside of the glove will be electronic sensors. These sensors will sense when Jamie’s arm/hand muscles move and will move individual fingers according to those motions. There are two sensors per finger – one contracts the finger, the other releases it. It is pretty damn amazing. Because Jamie’s hands aren’t uniformly shaped, there may be some fingers that this doesn’t apply to (Note: last Monday, at the AAD mothership in Irving, they told Jamie exactly that. So, on some of her fingers, she will have the sensors/individual fingers and then, on the fingers were there is less available bone, there is an extremely new technology that is in place that would require some pins to be inserted where the finger would be, and then a prosthetic is put on that finger, and then you rely on electronic sensors to move the finger… as you can see, I barely know what is going on with this yet,… but I will…. Sometime soon. (Btw, that picture is from Jamie's PTOT session following our meeting with Bernie.... he came to St. David's and talked with Bob and Kerry about what they could offer for Jamie. Getting advice from our trainers has proven invaluable, because they know the right questions to ask and they can tell help nudge us in the right direction).

3) On Saturday, we will all be going to Austin City Limits (along with the rest of civilized society, apparently), but we’ll be going in style! (for a few reasons) First, Aaron Behrens, the lead singer in Ghostland Observatory that came to visit Jamie in the hospital at St. Davids, offered to give Jamie the same side-stage treatment that we received in July at the New Braunsfels show. Aaron and Thomas, the other member of the band who also visited, have been so great to Jamie… really, some of the best moments we have had following Jamie’s illness have been brought by these two guys (and by Cater and Becky, who really connected us with the Ghostland boys). So, we’ll also be cruising in style because Jamie will be driving a scooter that was originally gifted to us by Tommie Leon, a friend of Jamie’s from high school. That will be pretty cool. Also joining us backstage will be Roni, because she was given all-access passes because the group behind ACL selected Roni’s T-Shrit design as one of the official ACL shirts this year!!! Very exciting news, and very cool that she got backstage passes for her work. Good job Roni!

4) It is Jamie’s 21st birthday on Sunday! We are so grateful that Jamie is still around to celebrate this landmark occasion. It was almost a year ago that we very nearly lost her. Things could have been much worse for her and for us, so considering all of the things that didn’t happen to Jamie, I’m very happy. We love her so much and she continues to make such amazing progress. :)

Finally, we had a great weekend in Dallas to celebrate Yom Kippur (the Jewish day of atonement) with the family. It was Jamie’s first road trip since she, Michelle and I drove from Houston to Austin in May. It was great to see everyone. Jamie visited Shelton, her old school, and some of her old friends, including the Applebaums. There were some people that Jamie wasn’t able to visit (Prescott’s, we’re looking at you!) but Jamie is planning on several more trips in the near future, with Halloween looking to be the next trip. Thanks for all of your support and we’ll talk to you soon!

9/25 - Tailgating with the Happy Hook-ers

Last week, most of the Silva family – that’s mom’s maiden name, of course – went to tailgate together before the Texas vs. Texas Tech football game with our tailgating group, The Happy Hook-ers. Cute name, right? Mom has been tailgating with these guys for a while now, and I’ve only joined up as of this year. They’re a big group of around 80 people (without guests), but that number was wildly inflated for the Tech game. So, the two founding members of the Hookers – Kim and Diane– approached mom with an idea: they wanted to donate the proceeds from the Texas Tech tailgate to Jamie, and they’d also set up some donation buckets at the tailgate as well. Then, Orlando, the owner of Taco Shack, got in on the action and offered to have some donation buckets stationed at the local Taco Shacks here in town. (There are a lot of Taco Shacks, and, in all seriousness, they are awesome… maybe the best in Austin and DEFINITELY the best place to get good tacos quickly)… Anyway, so, they set up the donation bins for Jamie, and I was expecting some money, sure, but not what we ended up getting… we were absolutely blown away by the generosity of the Happy Hookers and their guests.

Jamie had a good time at the tailgate too. This, I think, was the first major public event that Jamie had attended with her prosthetics on and while she was walking around. She didn’t have her wheelchair at all. Definitely the first time for that! What’s neat was that once the tailgate got going, she lost some inhibitions and she started to walk a few steps here or there without support from the walker or from anyone! That was amazing to see. And it was seen by a lot of her Silva brethren – Nicole (nee Silva) and Stephen Lahti; Zeke and Marc Silva (they’re brothers, FYI); Cindy, Joe and Chris Martinez; Letty and Ramon Fernandez (mom’s/our cousins), and we, the Schanbaums… so, when you think about it, I guess there weren’t too many “Silvas” there… but still it was a good time. And we can't forget about Jamie's friends that showed up, like Molly and Michelle and Jeff... also some of my friends showed up too, which is nice... thanks.

There was also a reporter from ABC there… I think he may have been a journalism student from UT who was working with ABC… I don’t remember, you should ask mom… but Jamie interviewed and her story was on the news on Sunday morning… mom says that it is on the internet, but I can’t seem to find it anywhere. When it pops up, I’ll post it. Anyway, that’s all for now… gotta get some stuff done before I leave for Dallas – time to go to the fair and celebrate Yom Kippur with the family in Dallas!

9/17 It's Jamie

Hey everyone! Jamie - checking in to keep you posted. Last weekend I had the pleasure of meeting Rayna DuBose. Rayna is another survivor of meningococcal meningitis who lost her legs below the knee and up to her mid forearm. I met Rayna and was amazed at how well she was able to move around. Let me add that she was wearing high-wedged heels with her prosthetic legs! We met because she was giving a speech in San Marcus at Texas State. I didn’t know what to except, but maybe an auditorium? But instead they had a huge room with round tables with about 2-300 people, who all were fed food. Rayna was a huge inspiration. She had an amazing way to capture the audience’s attention. They were all laughing and were all moved by her story. She was such a huge inspiration to me, and showed me that this is something that I could do. I met so many people and had a great time at Texas State. Who knows what the future holds for me.
The other day in PT/OT Bob took me out driving! Yeah, that’s right! Bob and I hit the road. We started off in the Hancock center, first just getting used to driving with my hands. But once I got used to it, we went through the Hyde Park neighborhood. Not quite like old times, but it will be later down the road. No pun intended. On another note, in my last PT/OT session, we met a prosthetist that specializes in hands. He brought down this new hand that is so new, that there is no news press on it yet. It was basically the opening of the iphone for hands. They’re luckily located in Irving, Texas. I say luckily because they are literally the only ones with this prosthetic. We’re having our evaluation two Mondays from now, and I think that I might get them in maybe two months from now. I’m so excited!!
I know it might be a little late but it was recently my mom’s birthday on September 4th, and I just wanted to mention how grateful I am to have her in my life. Life can get pretty challenging, but this year was especially difficult on everyone. But my mom was there for me, just as much as the sun was there for earth. And I am, needless to say, thankful for what she has done for me. And I love YOU mom!

This is Jamie, checking out!

9/11 - More videos and pics of Jamie!

Hey everyone! Look at me, I'm actually posting when I said I would. First, I'll hit on a few of the developments that have happened (or are happening) from the past few weeks.

First, Jamie is spending a lot more of her time walking around on her prosthetics. I'd say that she has her legs on 25% of the time now. She also has a fun rolling-walker that she can use, which doubles as a seat for her. It's one of those cool walkers that you see people use at grocery stores and whatnot. Very useful. Even though her residual limbs are still pretty sore when she walks around, she's getting more and more comfortable. In fact, those little stumps are getting littler. As had been told to us many times, her stumps are shrinking pretty quickly. She'll start the day wearing 6-plys of socks on one leg, and then, by the end of the day, she'll need an additional couple of plys. (If you aren't up to speed on the whole "6-plys" conversation, on each of her stumps, before it is slid into her prosthetic, Jaime puts socks on. But, unlike regular socks, these socks are numbered to indicate how thick they are - 1-ply for the thinnest, 3-ply, 5-ply are thicker. So, as Jamie's legs shrink throughout the day and/or the week she will adjust her socks accordingly... so that's some fun info about socks...)

Here's another fun little update. The kind folks at Taco Shack in Austin (are they elsewhere too? they should be) - whose owner is a member of our tailgating group, the Happy Hookers - has offered to put donation jars in all of his stores, with the donations going directly to Jamie!! Pretty wonderful, right? I'm not sure how long they will be in the stores, but they will be there until at least the Texas Tech game on the 19th. We are honored by these kinds of efforts being done on Jamie's behalf. Thank you so much!!!!

(Also, did you notice Jamie has been posting lately. I LOVE IT!)

So, here's the videos I promised after yesterday's post took way too long to upload:

First, some leg presses -



Next, some balancing exercises:



And now, Jamie walking away from me... look how far away she is!



That's all for now! Talk to you all later!

9/10 - Videos and pictures from Jamie's past week!

Hi everyone! It's been a little while since I've posted (why do I feel like that is my customary introduction, now), but to make up for it, I'm going to post some pics and videos... I figure that everyone will like this more than reading, anyway. (For those of you reading on facebook, now would be a good time to click the link I pasted above so you can see the videos/pics). So, without further ado:

This is Jamie riding a tricycle yesterday. Mom is taking the video and that's Bob, her OT helping her along. Pretty neat stuff, huh!



Here's a video that everyone on facebook liked from last week. This is Jamie walking without supporting herself on the parallel bars:




I intended on posting some more videos today (like of her doing leg presses or of Jamie doing some more balancing exercises) but DAMN, these videos take forever to upload and now Jamie's PT session is over... so tomorrow, I'll post some more... promise :)

september 1, 2009-can't believe its september

Hey viewers, this is Jamie again with another blog post on what has been going on recently. In PT/OT I have been making huge progress! I have gotten to the point where I can walk with one hand on the parallel bars, and onto to walking with only placing my hands in someone else’s in front of me! With no walker or anything. Kerry, my PT, and I have been discussing how I should move onto a 4-wheeled walker. It’s the walker that looks like an upside down “y,” and has a little basket with a seat on top of it. With this 4-wheeled walker, it will completely eliminate the wheelchair. Thank goodness. But besides that, I have become mobile while standing, with Bob (my OT), by bending, turning, shifting weight, reaching, grabbing, etc. It is really exciting to see what new things I can do each day.
On Sunday the family and I went to Fonda San Miguel, to have a nice Mexican brunch on the day of wicked, the musical(which was awesome). I bring this up because I went in with no wheelchair. I even walked around the buffet line. My family was really proud of me…I could tell.
The other week I also revisited my high school, St. Michaels. It was truly amazing to see some of my former teachers, especially Mrs. Prior! I have always loved her and her spirit, and reuniting for only a minute’s worth, really did highlight my week. At St. Michael’s we discussed the gala that would take place in November that would be in honor of my name. I am really excited for that to happen. This event will also be a whole year after being admitted to the hospital. Crazy how much can happen in a year.

Alright viewers, I’ll keep you posted on what happens next.
Tah tah