Sunday, November 15, 2009

11/15 - Thank you!

So, on Saturday, November 7, we had our first fundraiser and it was a huge success. We don’t know exactly how much we raised, but it was a lot. Maybe I’ll post the final amount, when we finally compile the numbers…. It’s not that it’s a complicated calculus, its that now that we’re done with the event in Dallas, we’re onto planning for the “big” event in Austin on February 27. But, before we (mentally) leave the Dallas event, we have someone we need to thank. Regan Wagh came through for us in a big way, “helping” arrange the venue for us at Liar’s Den, which, by the way, was a fantastic place to have the fundraiser. She’s wonderful! I’d also like to thank the amazing turnout from Jaime’s Dallas-based supporters. I got to see lots of our friends and their families (who, of course, are also our friends) that showed up. Jamie had a great time, and there wasn’t a walker to be seen. Jamie walked around the event meeting all of her fans. She’s really getting quite good at working a crowded room. Really, I just wanted to say thanks to everyone that helped make the fundraiser a huge success. So, thank you… and no, I didn’t win in beer pong. I’m a bit embarrassed.

Friday, November 13, 2009

11/13 - One Year Later

One year has passed since Roni rushed Jamie to the hospital because she was having a severe asthma attack. It has been a long, arduous, inspiring, exhausting, heart-wrenching and difficult year for Jamie. Still, knowing how close we got to losing Jamie, we can’t be anything other than happy with where we are. Jamie wasn’t able to get out of bed from November until May (more or less) and now she is walking on prosthetics without any assistance. Remember how many posts were almost entirely dedicated to things like protein levels? Crazy, right? In December of 2008, we sent pictures to Houston in a last-ditch effort to get someone (anyone!) to give Jamie a second opinion about amputating her hands at the wrist and legs above the knee. No one would take her except for Dr. Lin in Houston. Then, in February, after Jamie took about 50 drives in the hyperbaric chamber under Dr. Lin’s supervision, we compared those December 2008 pictures with those taken in February and we saw the miracles that took place in the hyperbaric chamber. Now, Jamie is speaking about her experiences in front of large audiences and telling them about how far she’s come, and those same 2008 pictures are included in the video that plays before she speaks. Jamie has made so much progress, it’s amazing. After thinking that we were going to lose her whole hands, Jamie is writing and drawing better than I ever could.

We have a long way to go before we’re done – in fact I’ll be posting soon about the recommendations we got from Advanced Arm Dynamics about hand-prosthetics and the amazing fundraiser we had for Jamie in Dallas last weekend. She spoke at Shelton and at St. Michael’s. She’s been busy, and I don’t think she would want it any other way. She (and the rest of us) owe a big debt to everyone out there who helped Jamie get back to her life. This is our way of making sure that Jamie has the opportunities to return the favors. Thank you all so much for following Jamie’s journey. It has been… interesting, to say the least. Dramatic? Fun? I hope that, no matter how dark things got, we were able to handle things with a bit of levity and humor. That’s Jamie in a nutshell. She’s got grit but also has a great aura about her. She has embraced her new role and her new life and is really working it. She’s absolutely killing it at her speaking engagements and is making major strides (literally) with her physical recovery on a weekly basis it seems. Jamie is amazing and we’re so lucky to have her with us still. Thank you to everyone who helped us get here.

Speaking of, here is a picture of Jamie and Jen Griffin, who has been a major inspiration for Jamie:

Wednesday, November 4, 2009

11/4 - Jamie drives my car! (but first, some info about Saturday's fundraiser)


I really want to tell you this awesome story about Jamie, but first, we need to talk about the fundraising event we’re having for Jamie on Saturday. At Liar’s Den, which, of course, is located at 2710 McKinney Ave, Dallas, TX 75204. It’s going to be awesome, and you’re going to wish you were there… unless you were there… then you’ll be cool. It’s on Saturday, November 7. It starts at 12 and goes until 6 pm, but most of the fun will happen early. We are planning three attraction/events on Saturday. All it costs is 20$. Here is what the 20$ gets you: you’re entered into a beer pong or flip cup tournament and you get all the beer you can drink. If you want to be entered into both of the tournaments, you just need to throw down another $20. Also, there are $3 wells during the event too. Oh, and there’s food too, but that’s from Liar’s Den. I’ve got a few details to add, below…


(1) Silent Auction – holy crap. There are so many items that have been donated for the event. A small sampling of items includes a slew of sporting event tickets (Stars, Mavs, Byron Nelson), hotel stays (Joule Hotel, for example), bottle service (Wish Lounge, PM Lounge), lots of gift cards to stores (Tootsie’s, Castle Gap), restaurants (Sullivan’s, Craft, Pappadeaux and more) and other things (iPod shuffle, wine basket… ). Sounds like a lot, right? Well, it is! And that is why you want to come, obviously!


(2) Beer Pong and Flip Cup tournaments – Not that I condone drinking games (I do), but we’re having a few tourneys set up, just for fun. The Beer Pong Tournament will start at 1 and we’re planning for a bunch of teams, so let me know asap if you and a partner want to play, so I can reserve you a spot! Only 32 spots in the beer pong tourney, max… we may break it down to a 16 team tournament if we don’t fill it up 32, so get in soon! As for the flip cup tournament, it will be 6 people a team and will start, more or less, after the beer pong tournament ends. That’ll be fun too. And the winners of the tournament each get a brunch at Blue Mesa Grill, which, as most people know , is an amazing restaurant in Dallas (and soon, Austin!). Like I said, above, we’ve received some amazing items!


So, yeah, that’s about it for the event, email me if you want to sign up for a beer pong team. My email is “my last name” at gmail.com (you should be able to figure out how to email me, I just don’t want any spambots to get my email…). So, email me with questions or with your beer pong or flip cup teams!

And now, a cute story… So, on Monday, Jamie drove again at occupational therapy with Bob. Later that day, mom told me that Bob told her that Jamie is cleared to drive on her own! This is wonderful and frightening news for everyone! Anyway, Jamie and I were at a calculus review session on campus (which, was an interesting experience on its own) and drove there. Afterwards, I mentioned to Jamie that I was really proud of her for being cleared to drive…


Jamie: What do you mean?

Nick: You’re cleared to drive? Bob said that you can drive on your own now.

Jamie: He didn’t tell me…

Nick: Oh, well he must have told mom then, and she told me… so, do you want to drive?

Jamie: Now?

Nick: Yeah, right now. Sound good?

Jamie: Sure!

Nick: You ever driven at night?

Jamie: No…

Nick: Whatever, drive anyway….


So, the drive went really well! Jamie is still relatively bad driver, so that’s great! We drove from campus to home in my car, not a long drive, but it was dark and student-filled, and she did a solid job! She drove in my car, used her prosthetics to push the pedals, and drove like normal. It reminded me of when she was first learning to drive… so, that’s scary. But, it’s a big hurdle for Jamie, and one of the more fun hurdles to overcome. Anyway… back to the party planning… hope to see you on Saturday!!! We’ll all be there… waiting for you! For now... more pics!


Jamie (as Charlie Chaplin), John Michael (as himself)


Jamie making the ugly-sad face at her reunion tour to Houston last week:

Jamie looking fierce for her birthday dinner..


See you Saturday!