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http://www.austin360.com/recreation/jamie-schanbaum-who-lost-limbs-to-meningococcal-septicemia-1044612.html

MY BIKE!!

hello viewers!!

I thought I should tell everyone about my wonderful month of October(and now November), and how significant it was to me! As most people know, I started training for my bike in June, where I met Sean Ahmadi, my trainer. Him and I met atleast twice a week, where we focused on strengthening my legs by starting off on a stationed bike for 5-10 minutes, then go to the floor to stretch out my legs, work on my stomach, then up nd using the lat pull downs, and more biking. But never on my actual bike, on the road until Sean thought I was ready. And I agreed. But as the months kept going, I wanted to get on the road with my bike even more. Then my wish came true, right before my birthday.

My birthday is October forth, and it was a monday this year, but the weekend before Sean and I went on our first ride. Sean and I were both nervous; But, I think Sean was more nervous. We were worried about how to push off and stop, or how to brake, etc. But we started off with him holding my bike as I got on, and then he would do the whole "dad thing," by holding the bike as we started going and he let me go when I was ready. It was cute. haha. But we pushed off, and Sean got his bike to catch up with me. Man, what a great moment that was. After all this time, it was so amazing to feel the wind on my face, blowing by my ears, and it was great to be one with the moving scene. To write what I felt at that moment, is hard to describe. Sean even pulled out his iphone to record me, and in it, I was just smiling. Couldn't even talk. He asked how it felt, and I just smiled, opened my mouth but couldn't say anything. and just laughed. What a great moment.

Then how we stop, sean goes a head of me to get off his bike, and as I would slow down, Sean would grab the bike to stop me. He is great. I cant believe how wonderfully well this has all gone for me. I cant believe I've gotten to this point. One year ago, I was barley walking on my own yet. And if someone told me that this is what I was going a year from then, Im not sure if I would of believed them. so, yeah! yahoo! I'm proud of myself! yippie!

So on my second ride, we worked on braking, which made me nervous. Then we worked on shifting gears, on my third visit. And by this point I'm riding 4 miles per ride. I impressed myself. By the 4th ride, I was riding about 8 miles at the veloway. This entire time was at the veloway, and for those who are unfamiliar, its a place for cyclists, and roller blade/skaters to go and do a few laps. The entire course is three miles long and no runners or dogs are allowed. It's really interesting. Then possibly my 5th ride I went on South mo pac, where cars are going 60-70 mph and I rode with Sean, riding about 8 miles.

Then by my 6th ride I rode 10 miles at the livestrong challenge on October 24. I couldnt believe it. There I rode with 3,000 other cyclists. I couldnt believe it. There I was not only accompanied by Sean, but also Aaron Foreman, Greg Lakompski*, Carlos Garcia, and my cousin Zeke Silva. We called Zeke to see if he would like to ride, and he accepted and rode the 10 miles with me. Aaron rode 65 miles, Greg and Carlos rode the 90 miler. UNBELIEVABLE. If you are unfamiliar with these people, check out my earlier post. Carlos, an above the knee amputee, just started riding a year ago only riding 10 miles, and now did 90 miles. holy poop. I think I can do that. Atleast at some point.

Anyways, this all happened in October. My first ride was the first weekend, and then three weeks later I was at livestrong riding 10 miles. What an accomplishment. I cant wait to see what happens next year. Thanks to those who keep reading, sorry I haven't been active on blogging. But I've been so busy with school. It's been the hardest yet. 4 more weeks til school is over, and I cant wait.

Until next time. stay posted..

my new chapter in my life

Hey everyone(if there are ppl still reading, since its been so long),

I just wanted to update you guys on what's been going on with my life. Its the summer time, and the sun couldn't shine any harder in Texas, for it seems to be a pretty sweaty one. During this time I am enrolled for a summer course at ACC taking biology. I'm half way done and its been really exciting, actually not really. Other than that, I wanted to discuss with you guys my new chapter in my life, cycling. Before I got sick, my Bike and I were really close. We would biked 10 blocks to school everyday(never once took the bus or my car), go to my friends in west campus, go to HEB, go to epoch coffee to study, and any other place our peddles would take us. But once I got sick, and went through the whole realization that I would have my legs amputated, my hope to ever ride again, was gone.

But since then, I have met pretty incredible people that have motivated me and inspired me to get back up on that bike, and told me that it was possible to ride again. My first bike enthusiast was Bob Whitford, aka 1 armed Bob. I met him as my occupational therapist in out patient rehab. He is a para olympian in cycling, and is a very handy man. The next enthusiast was my prostitist(leg conformist), Aaron Foreman, he is a completely abled body but rides road bikes all over austin and does marathons all over the country and more! Aaron has just finished up my swim legs, but his next big project are my cycling legs which I am is so excited to have. Enthusiast #3 is Carlos Garcia. Carlos had cancer in his leg, and faced an above knee leg amputation a few years ago. Carlos is only older than me by a few years, and just graduated from St. ed's in kinesiology and is going to prosthetic school to eventually join Aaron and his prosthetic company. It was really exciting to meet Carlos, because not only is he very similar in age and that we both faced amputations, but he is also riding his bike again. Carlos is also apart of the livestrong team, and rides for them a lot. Okay, there are 3 more people to introduce! #4 is Chris Carter. Carter is from the bike sports shop off S Lamar, and is willing to donate a bike to me!!! maybe not fully, but still, I will be getting a great discount. I just met Carter a few weeks ago, but I can tell that its only the beginning. He plans to help me and making my bike 100% Jamie adaptable, for we are looking at different brakes, and shifters, and peddles that are accessible for me to use. Did I mention my bike is red? It's beautiful. I haven't brought it home with me yet, but I cant wait. Person #5 is Greg Lanier. Greg is a patient of Aaron's as well, for he has been a below the knee amputee for many years but rides his bike all the time. Aaron, Greg, and Carlos all ride together from time to time, and I cant wait to join them for future rides. Okay the last person is Sean Ahmadi, and he is my trainer. Sean is going to help me strengthen my core and legs for my future in cycling. I have only worked out with him once, but I hope to keep training for a long time.

Okay, you have now met my six people Bob, Aaron, Carlos, Greg, Carter, and Sean. Seems like an awesome beyond awesome team that I got behind me. I cant wait for my future to unfold. I know in October there is a livestrong challenge, and I think that that will be my goal. I heard you can do any amount of miles you want, which sounds good to me.

Okay thats about it, when it comes to updating on my new chapter in my life. Other than that, stay tuned.

WORLD MENINGITIS DAY 4/24 - TEXAS MENINGITIS AWARENESS DAY 4/25

It's been quite awhile since I've written and I do miss it and miss everyone - as you can imagine my life and all that it encompasses is always quite busy. So where do I begin. Let's start with our First Annual Bluebonnet Gala - what an incredible success from every imaginable angle. Needless to say we worked our butts off. Our success always lies with the generosity of others. Errocreative (Roni's graphic design company) - Did you see what they produced? OMG - the Save the Date - the invitation (what a job-2500 invites were e sent out), our signage(huge signs), the most beautiful well designed program. The JAMIE Group will be forever grateful. Which brings me to Fastsigns - once again they pulled through with awesome signage. Lindsay Stillman was my rock and a hard worker - she helped us organize the best live and silent auction items ever. You were lucky if you attended and even luckier if you were a auction item winner. Letty Landa helped organize our volunteers. If you saw what we had to deal with well you would know we couldn't have done it without our volunteers - so a BIG shout out to ALL our volunteers. Chef Alma Alcocer-Thomas extraordinaire - the food was beyond belief and once again if you weren't there you missed an awesome array of foods. St Michael's Academy - Amy and Wade were outstanding and of course so patient. Who knew that you could bring such beauty to a high school cafeteria . Our ever so talented emcee Ron Oliveira was perfect and went an extra mile pushing the prices up on the live auction - was a lot of fun. Great Events you were also a great help and as we've said before - we couldn't have done it without you. The Schanbaum / Silva Family always my rock - what can I say. Family is so important to me and I'm blessed to have them by my side. Last but certainly not least my BEAUTIFUL children - Nicholas, KC, Roni and Jamie. God blessed me and I believe I'm the wealthiest mom in the world with all the richest my children bring me. Love them so much. I'm sure I'm forgetting people but know that everyone that we're a part of this successful event will always have a part in my heart.
Despite the fact I have not quite put the gala to rest and that there are still a few details to put a close to it, life goes on. That being said - we've been very,very busy and where do I begin. Jamie got some beautiful, awesome vacuum legs (with coverings). They look great and after a lot of tweaking (and we're still tweaking) she loves them. Every night we must charge them so that in the morning when she puts them on she presses a couple of buttons, they create a seal to her limbs and off she goes. We are however talking to Jamie's new prosthesis' - did I tell you Jamie has a new prosthesis' and we love him - about getting a pair of swim legs (look out summer) and a pair of running legs (look out runners). We are also in the beginning stages of Jamie getting a bike and this is not as easy as just getting a bike. We have to consider jamie's legs as well as her hands and how is she going to brake - look out runners.
There's a lot to talk about but I guess the most important thing I need to say is that today is World Meningitis Day and tomorrow the 25th will be Texas Meningitis Awareness Day. Jamie and I have reached out to as many people as we could. We've done interviews throughout Texas - been on talk shows - are talking and will be talking to several organizations - we did a public service announcement - next week we will be traveling to south Texas to speak and in a week we will do media outreach in Austin as well as a few events in Dallas. We've come a long way since this horrible disease took over our world but we've also come a long way in bringing awareness. We must remember that this is a vaccine preventable disease. We must not let this happen to anyone again. No child should have to endure the pain and suffering that Jamie has gone through. We must not let the past year go in vain. Help us help others and spread the word - Vaccinate.

The Bluebonnet Gala was Amazing!!!

[I know it has been a very, very long while since I posted, but I’ve been quite busy. To hit the highlights, after two months of heavy networking, I’m back in Dallas (Irving, actually) working at my new job! I started on February 5 and I’m really enjoying the new gig. The hours are long, but, maybe I that’s just related to the fact that I hadn’t really been working a normal, full-time schedule since Jamie fell ill in November 2008… Man, lawyers work a lot!! I’ve also been the No. 2 in command of planning The J.A.M.I.E. Group’s first annual Bluebonnet Gala, which is our first major/formal fundraiser. Also, I ran a half-marathon on Valentine’s Day. It’s not related to my absence from this blog, but it’s still pretty neat!]

Anyway, that being said, I’m glad to be back writing about Jamie and her story. It’s been so long since I’ve written that the general theme of her story has changed. When I used to post, the posts were dedicated to the medical minutiae of her recovery from Meningococcal Septicemia and the amputations related thereto. (“Thereto”… can you tell I’m working as a lawyer again?) Now, the story has changed a bit. Certainly, a vast majority of the story pertains to Jamie’s gradual acclimation to her new life, new legs and new abilities; however, there’s a large chunk of this blog that will become dedicated to Jamie’s new mission. By acting as the main voice of The J.A.M.I.E. Group (which is an acronym for Joint Advocacy for Meningococcal Information and Education), Jamie will attempt to educate students, teachers, parents, doctors and whoever else that will listen about the dangers posed by Meningitis. Meningitis is a life-threatening disease that, considering how severe and sudden its effects are, the public and the medical community are relatively under-informed about. But, if you’ve been reading along, you’re well aware about the damage that this disease can do.

This post is about The J.A.M.I.E. Group’s Bluebonnet Gala and what an amazing night it was. Everything went as planned, and, thanks in LARGE part to some amazing volunteers, the evening was a rousing success. The event was held on Saturday, February 27 at St. Michael’s, Jamie’s high school. Upon entering the building, you’d have no idea that you were stepping into a cafeteria. The place looked magnificent. The good folks at Great Events, a party planning company whose time was donated by one of Jamie’s supporters, flew in from Chicago and they put on a great show! Anyway, people from all over the state came to Austin to celebrate Jamie’s inspiring recovery and her new mission. I’m still flabbergasted about the amount of live and silent auction items that were donated for the event. There were over 80 items, including a 1.00 carat diamond, a football signed by the 2009 Texas Football team, autographed Adrian Peterson, Devin Hester and Matt Forte jerseys, lots of artwork, a villa in Acapulco for 10 people (with staff), $1000’s of gift cards to restaurants and other stores… I could go on and on. The food, prepared by renowned local chef, Alma Alcocer-Thomas (who donated much of the expense of the food), was fantastic. Everyone left talking about the meal that she prepared. The night was hosted by Ron Oliveira, one of mom’s high school buddies who just so happens to be the main anchorman for KEYE-TV (Austin’s CBS Affiliate). He did a fantastic job, and along with our auctioneer, Steve Glink, kept the crowd entertained all night. The best part of the evening was, without a doubt, Jamie’s video and speech that she made to the crowd after dinner. As the blog readers have witnessed first-hand, Jamie has developed into a budding writer and public speaker, and she showed off those skills on Saturday. She was great up on stage.

Also, Letty Landa and Lindsay Stillman, who both volunteered their time and also arranged for other volunteers to attend, made sure that our event had the right amount of supporting staff for the set-up, the event, and the post-game. Amy and Wade from St. Michael’s were critical for us as well when it came to setting up for and cleaning up after the party. Then, there were the two bands that were perfect: The Brimmers and The Cory Cross Band. Even though they aren’t typically playing at formal galas, you’d never know it. They, like everyone else, were perfect. Needless to say, a LOT of people came together to make this work, and they did their job. It was amazing!!!

I think I can speak for the family when I say how grateful we are for the amazing and jaw-dropping amount of assistance we received from both obvious and random sources. We couldn’t have done this on our own. We don’t have the final tally on the amount of money that we raised, but I can definitely say that we exceeded my highest expectations. We’ll be doing this again next year in Dallas, so we hope to see you all there. Thank you all so much, and now, it’s back to real life for a bit! Hopefully, the next update will be about Jamie’s new pair of legs that she’s been wearing… Thanks for reading!

February!

hey there everybody. I just wanted to squeeze in a new post. February is a big month, especially to the J.A.M.I.E. group because we are having our first annual Blue Bonnet Gala, thats being held at my old high school St. Michael's. It will be taking place on the 27th, we are expecting people from all over to come in. It's going to be really exciting to see who comes, because I know that I will be seeing plenty of people that I haven't seen in years. The Schanbaums are in the midsts of all of the planning and it's about to exceed maximum capacity of stress for us. Everyone is working really hard in putting it together. It's going to be a really amazing event.

Another exciting thing that happened in february, was my grandfather's birthday, Gene Schanbaum. He just turned 32 and looks amazing! but on a serious note, this man has always been there for me, through it all. I have always been able to rely on him, and he would be there for me to give me advice. I love him so much, and I hope he had a super birthday - Love you!

Another exciting thing that is happening with me are my legs! When one becomes an amputee, you are given your first set of legs, called temporaries. New amputees use their temporaries until their leg conforms properly to the prosthetic, which can take some time. When an amputee moves up from their temporary legs to their permanent legs, it is a big deal - FYI. Which is what I am in the process of doing right now! Im getting my permanents, that are "cutting edge," and will have calves(instead of the crobar). I am so excited and I can't wait to wear my leggings with my "shaped" legs and moccasin boots! haha. I will be sporting them at the gala.

I also just want to squeeze in that Im really proud of my sister Roni and her company erro creative. The company has only started just a few months ago, and they have so many clients that keep them busy all week. If anyone out there needs any branding done for a company or a website, erro creative is the one to do it(http://errocreative.com/). They're wickedly good!

Other than that everyone has been on a move. My brother just got a new job with the Ethos Group in Irving. KC got a new job at the "eye doctor" office in dallas, and is finishing up her course work with school. And my mom is going over and beyond for this event, she has been amazing coordinating everything with great events. I am very proud of my family, and I love them very much.

I am also proud of myself, for I am officially a 1 year amputee, as of february 6th. I cant believe that a year ago, i was in the hospital, wanting it to be a year from now. and here I am, a 1 year amputee who has overcome one heck of a year. I am someone who was told that I was not suppose to make it, and that the fact that I am alive, is a miracle. And here I am, already enrolled at UT, taking a full load (15 hours), walking to my classes, driving, regaining my independence and it feels gooood.

i am proud to be where i am right now, and happy that ya'll are still apart of my life. thanks for always reading the blog, praying, visiting, updating, and/or just basically thinking of me. everyone out there has helped me through the way, and i thank you for that.

other than that I hope to see everyone at the gala, it should be a blast!

1/15 - Here's to 2010 - It's Been Too Long

First of all it's been too long since I have posted and second it's been too long since there's been a post but the holidays were sooooo busy - to say the least. It's was very important that the holidays be extra special for Jamie and the family since a year ago we were in the hospital - more importantly ICU. Thanksgiving was in ICU Seton and December holidays were in ICU Houston as well as New Years in ICU. So these holidays were definitely a time for reflection and gratitude . How could it not be? We knew that the holidays could have been a whole lot different. We reflect that we could have had the holidays without Jamie - we're grateful that we had the holidays to celebrate with Jamie. And we did just that - Thanksgiving was in San Antonio at Uncle Dean & Aunt Betty's - Hanukah was in Dallas at Papa Gene's with all the Schanbaum/Clay/Gross Family. Thanks Aunt Nancy for pulling it all together and for the doozies - Yum Yum!!!!!. Xmas was down in Valley at Uncle Joe and Aunt Cindy's house with the Silva/Martinez/Fernandez family where we feasted on all that is good and culminated with a killer game of Chalupa (Mexican Bingo). New Years - well that's a different story - Jamie & Roni celebrated in Austin with lots and lots of friends at the house that included a bounce house - Nicholas & KC celebrated in Dallas & I quietly brought in the New Year in San Antonio with Uncle Dean & Aunt Betty and loved every quiet moment of it. That been said - it's time to diet!!!

More Importantly - The Schanbaum Family would like to send a huge Happy New Year to all our family and friends. To all the people who have stood by Jamie and to everyone who has stood by every word, every breathe we took. It was one hell of a year - one that I hope I will never have to live again. As Jamie puts it -" It was - forever - a life changing experience". Jamie continuous to inspire many people who cross her path. She is my inspiration, my hope and my love. As we turned the corner into 2010 Jamie is already in full swing - spreading awareness of the disease that changed her life forever. I asked that you continue to follow our journey because the best is yet to come. Here's to 2010!!!!!!

Tune in next week where we will update you on the media swing we have had - The Jamie Schanbaum Act came into law in January. Also Jamie continuous with her struggles on her legs and on her way back to UT as a full time student.