Wednesday, December 3, 2008

December 1 update - Jamie's attitude rocks, we keep chugging along and may move to Intermediate Care soon.

So, as always, I'll start out with the good news. Jamie is likely to enter intermediate care in the next few days. This will basically mean that she gets her own room, gets out of the ICU, and doesn't have the constant attention that she's become used to over the past three weeks (yeah, three weeks on Thursday). Still, don't get your hopes up about what that means. It may just be a bit of nothing, but it may be nice to get change of scenery.

Jamie has been eating and she's been asking her friends and I to read her the last book in the Harry Potter series. She's sort of internalizing the bad news about her hands and feet pretty well. I mean, she greets most people that come in to her room with "So... I have some bad news for you..." She just loves seeing new people too. We get waves of news and recommendations from concerned friends and advisers... we're trying to remain optimistic about Jamie's chances to keep as much of her extremities as possible. Still, there's nothing we can do about this until "demarcation" occurs.... and, to paraphrase Justice Potter Stewart of the Supreme Court said, "you know it when you see it"... he was talking about Porn. [Jacobellis v. Ohio 378 U.S. 184 (1964)]... well, we're all waiting to see it (talking about demarcation, not porn) with Jamie's extremities before making any decisions about how to proceed.

But, I'm back in Austin now and my work has been very supportive about my staying here and working from here. Until we get more closure on her hands and feet, things are going to remain in limbo. The next few weeks, some really shitty decisions are going to be made, and they all suck. I'm glad that Jamie appears to be taking the right attitude about what has happened. Until further notice, we'll be waiting for a miracle... but we'll settle for an improbability or an unlikelihood.

Talk to you more soon.
-Nick

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