Tuesday, December 8, 2009
december time! 12/8
Sunday, November 15, 2009
11/15 - Thank you!
Friday, November 13, 2009
11/13 - One Year Later
We have a long way to go before we’re done – in fact I’ll be posting soon about the recommendations we got from Advanced Arm Dynamics about hand-prosthetics and the amazing fundraiser we had for Jamie in Dallas last weekend. She spoke at Shelton and at St. Michael’s. She’s been busy, and I don’t think she would want it any other way. She (and the rest of us) owe a big debt to everyone out there who helped Jamie get back to her life. This is our way of making sure that Jamie has the opportunities to return the favors. Thank you all so much for following Jamie’s journey. It has been… interesting, to say the least. Dramatic? Fun? I hope that, no matter how dark things got, we were able to handle things with a bit of levity and humor. That’s Jamie in a nutshell. She’s got grit but also has a great aura about her. She has embraced her new role and her new life and is really working it. She’s absolutely killing it at her speaking engagements and is making major strides (literally) with her physical recovery on a weekly basis it seems. Jamie is amazing and we’re so lucky to have her with us still. Thank you to everyone who helped us get here.
Speaking of, here is a picture of Jamie and Jen Griffin, who has been a major inspiration for Jamie:
Wednesday, November 4, 2009
11/4 - Jamie drives my car! (but first, some info about Saturday's fundraiser)
I really want to tell you this awesome story about Jamie, but first, we need to talk about the fundraising event we’re having for Jamie on Saturday. At Liar’s Den, which, of course, is located at 2710 McKinney Ave, Dallas, TX 75204. It’s going to be awesome, and you’re going to wish you were there… unless you were there… then you’ll be cool. It’s on Saturday, November 7. It starts at 12 and goes until 6 pm, but most of the fun will happen early. We are planning three attraction/events on Saturday. All it costs is 20$. Here is what the 20$ gets you: you’re entered into a beer pong or flip cup tournament and you get all the beer you can drink. If you want to be entered into both of the tournaments, you just need to throw down another $20. Also, there are $3 wells during the event too. Oh, and there’s food too, but that’s from Liar’s Den. I’ve got a few details to add, below…
(1) Silent Auction – holy crap. There are so many items that have been donated for the event. A small sampling of items includes a slew of sporting event tickets (Stars, Mavs, Byron Nelson), hotel stays (Joule Hotel, for example), bottle service (Wish Lounge, PM Lounge), lots of gift cards to stores (Tootsie’s, Castle Gap), restaurants (Sullivan’s, Craft, Pappadeaux and more) and other things (iPod shuffle, wine basket… ). Sounds like a lot, right? Well, it is! And that is why you want to come, obviously!
(2) Beer Pong and Flip Cup tournaments – Not that I condone drinking games (I do), but we’re having a few tourneys set up, just for fun. The Beer Pong Tournament will start at 1 and we’re planning for a bunch of teams, so let me know asap if you and a partner want to play, so I can reserve you a spot! Only 32 spots in the beer pong tourney, max… we may break it down to a 16 team tournament if we don’t fill it up 32, so get in soon! As for the flip cup tournament, it will be 6 people a team and will start, more or less, after the beer pong tournament ends. That’ll be fun too. And the winners of the tournament each get a brunch at Blue Mesa Grill, which, as most people know , is an amazing restaurant in Dallas (and soon, Austin!). Like I said, above, we’ve received some amazing items!
So, yeah, that’s about it for the event, email me if you want to sign up for a beer pong team. My email is “my last name” at gmail.com (you should be able to figure out how to email me, I just don’t want any spambots to get my email…). So, email me with questions or with your beer pong or flip cup teams!
And now, a cute story… So, on Monday, Jamie drove again at occupational therapy with Bob. Later that day, mom told me that Bob told her that Jamie is cleared to drive on her own! This is wonderful and frightening news for everyone! Anyway, Jamie and I were at a calculus review session on campus (which, was an interesting experience on its own) and drove there. Afterwards, I mentioned to Jamie that I was really proud of her for being cleared to drive…
Jamie: What do you mean?
Nick: You’re cleared to drive? Bob said that you can drive on your own now.
Jamie: He didn’t tell me…
Nick: Oh, well he must have told mom then, and she told me… so, do you want to drive?
Jamie: Now?
Nick: Yeah, right now. Sound good?
Jamie: Sure!
Nick: You ever driven at night?
Jamie: No…
Nick: Whatever, drive anyway….
So, the drive went really well! Jamie is still relatively bad driver, so that’s great! We drove from campus to home in my car, not a long drive, but it was dark and student-filled, and she did a solid job! She drove in my car, used her prosthetics to push the pedals, and drove like normal. It reminded me of when she was first learning to drive… so, that’s scary. But, it’s a big hurdle for Jamie, and one of the more fun hurdles to overcome. Anyway… back to the party planning… hope to see you on Saturday!!! We’ll all be there… waiting for you! For now... more pics!
Jamie (as Charlie Chaplin), John Michael (as himself)
Jamie making the ugly-sad face at her reunion tour to Houston last week:
Jamie looking fierce for her birthday dinner..
See you Saturday!
Tuesday, October 27, 2009
10/27 - Walking into Houston and more
So, the three of us woke up at the crack of dawn and drove to Houston yesterday to see all of our old friends. Ostensibly, we were there to see Dr. Smith, Jamie’s plastic surgeon who performed the skin graft surgeries for Jamie. We were really there to say hi and show off. Oh, and Uncle Dean came to film some interviews with Jamie’s team of medical folks. We didn’t get everyone on film that we wanted, but we’re planning on coming back to Houston to get the rest of the interviews. Anyway, there were a lot of tears shed by Jamie, mom and all the ladies we saw at St. Joe’s… not being sexist here, it’s just that I, Dr. Lin, Dr. Thai, Dr. Smith, Michael, Anthony, Cody, Luke and the other guys are really tough… and cry on the inside. Everyone was blown away by Jamie’s luxurious locks of hair and how well her skin has healed. The biggest treat was seeing Jamie stand - remember, no one in Houston had seen her stand before…. In fact, no one had seen her stand from November 13, 2008 to May something. Jamie took pride in walking up and down the halls of the hospital, and when she wasn’t walking, we pushed her around on her walker, which has wheels. Jamie probably gave 40 hugs while she was there… everyone was so happy to see her. It was like old times. Dr. Lin was the cutest. Apparently, he had spent the week before our arrival spoiling our surprise visit… though I think mom forgot to tell him it was a surprise. Anyway, there are a bunch of pictures at the bottom of the post, so check them out. Thank you to all of our friends in Houston for taking such good care of our Jamie while she was in your… care. Also, thanks for letting us barge in and own St. Joe’s for another day. It felt good to be back.
On another note, Jamie’s spoke at the Blanco United Methodist Church last weekend and rocked it. She wrote about this already, and no, I wasn’t in attendance, but I wanted to give some impressions that I’ve soaked in from everyone else. Jamie did amazing… I don’t think Jamie wrote that, but she did. Uncle Dean produced a video that played to the congregation prior to her walking/speaking on stage. This was the first time anyone had seen this video and it was very good… very intense, as most videos of Jamie tend to be. [Something I’ve said several times in the past couple of days is, “I can’t believe how normal we thought this was… this was pretty intense.” … we looked over some old pictures of Jamie’s legs prior to her surgeries… it was … graphic]. This was her first time to address a crowd of strangers and talk to them about her story. According to all accounts of the story, Jamie knocked it out of the park! She got a standing ovation from the congregation and then there was a reception in her honor afterwards, as well.
Finally, we’re getting close to our first big fundraising event! I’ll have a separate post for this, with all of the details and whatnot, but it’s looking to be a rousing success! It will be held on November 7, from 12p to 6p (duh), at Liar’s Den (2710 McKinney Ave, Dallas, TX 75204). We’ve received commitments for a lot of big time auction items, some of which I’d like to be on the winning end of (for example, we’ll have some amazing tickets to the Mavericks, Stars and Byron Nelson). We’ll also be having beer pong and flip cup tournaments, with the tourney winners getting some actual prizes that they’ll want to compete for. More on this soon, but just mark this on your calendars and spread the word!!
OH! And, be sure to check out this amazing post, written in the Texas Jewish Post this past week and then, mom wrote a piece that was published today in the Dallas Morning News' mom's blog... you know, because she's a mom. Wow, that's a lot of links in one post... now for some more pictures!
Jamie and part of the Hyperbaric team:
Jamie and Mom hugging Allison and Michael:
Jamie and Dr. Lin:
Jamie and Waddell:
Jamie and Luke:
That's all for now!!
Tuesday, October 20, 2009
10-20 Thanks Blanco
Tuesday, October 6, 2009
10/6 - Jamie's Birthday and ACL, wrap-up
Happy Birthday to Jamie! Jamie turned 21 on Sunday, and she really started her 21st year with a bang! I guess it would be more accurate to say she ended her 20th year with a bang, because, as promised by the boys from Ghostland Observatory – Aaron and Thomas – Jamie was dancing on stage at Austin City Limits (ACL) with Ghostland. OK, so she wasn’t, like, front and center, on the stage, but she was only a little to the side, where the band’s family hangs out. It was an amazing show!! Me, Jamie, Roni, mom, Becca and Cris got to go backstage, then on stage, at the AMD stage on Saturday night. That was the second largest stage at ACL, after the Livestrong stage, and the amount of people watching Ghostland blew me away. However, the real surprise came at the end of the show… up until the finale, it was your usual Ghostland Observatory concert (meaning, it was an awesome, frenetic, non-stop electronic rock, light show…), but, unbeknownst to the crowd, the University of Texas Marching Band was sitting backstage, right next to Jamie and her crew. When Ghostland started one of my favorite songs – And The Band Marches On – the UT band assembled on the stage and started to rock along with Thomas’ beats and Aaron’s vocals. It was pretty great and the crowd was really into it. Afterwards, Jamie got some quality time with Aaron and Thomas, and then said so long. We’ll see them again in Dallas on Halloween. All in all, Jamie had a fantastic birthday weekend. We are so happy we got to share it with so many of Jamie’s friends… frankly, we’re just happy that Jamie is still with us, enjoying life.
You may have wondered how in the world Jamie could be getting around at ACL. Ordinarily, Austin City Limits is very difficult to traverse. There are thousands upon thousands of people, trying to get from stage to stage to see their favorite performers (I think there were a total of eight stages), and everyone traverses the same routes, more or less, across Zilker Park. Well, ordinarily, it would be tough for Jamie to see her favorite performers, and it was made even worse by the much-complained-about rainstorm that hit ACL this weekend. So, it was muddy. Very muddy. So, presented with all of these challenges, how did Jamie fare? Pretty well! Jamie drove around the park on a motorized scooter provided to her by a friend of Jamie’s and Cris’ family, Tommie. This scooter was awesome. Jamie got through the crowds and the mud with ease…. And if that doesn’t sound awesome enough, Jamie was able to take advantage of the “special access” section at each of the stages. These sections were immediately in front of the crowds, in a sectioned-off area that gave Jamie access to some of her favorite acts. She’d have to tell you more about who she was able to see. I’m not cool anymore, so I wouldn’t be able to tell you half of their names. I mean, she saw Grizzly Bear and Michael Fonti (I think that’s how it spelled)
Anyway, that’s all for now. Mom and I are off to Brownsville for a few days to retrieve some of her old belongings from the Valley that we haven’t been able to retrieve since November. See you in a few days!
Wednesday, September 30, 2009
9/30 - Jamie is driving; New hand prosthetic company; ACL; Jamie's Birthday!
First, we’re planning two benefits for Jamie in the next few months. The first one will be on November 7th at Liar’s Den, on McKinney Ave in Dallas. It’ll be during the day and a more casual affair than the one in February in Austin. Think kegs of beer, some fun music and general carousing. There will be a silent auction, beer pong/flip cup… all-in-all, it’ll be a wonderful time. $20 suggested donation, but I’ll have more instructions on the buy-ins for the competition in the near future. The other, bigger event (more of a gala) will be on February 27th at St. Michael’s in Austin. Think emcee, sport coats and good food.
So, onto the updates you’re looking for... but before that, a magic trick from Jamie:
... Nice...
1) Jamie’s back on the road! Bob, Jamie’s OT, got her back into a car for the first time since November 2008. Jamie and Bob drove from St. David’s to our old house on 48 1/2 street to the Hancock Center parking lot, and back to our current house in Austin. For those of you not familiar with Austin, that’s about 2 miles, total. She drove using hand pedals/brakes that are located next to the steering wheel. According to Bob, it wasn’t too hard for her to drive. This was a week or so ago, and Jamie hasn’t driven since, but it’s good to know that Jamie can still drive well… or as well as she could drive before… which really wasn’t that well, but you get the point. We’ve been discussing what kind of car to get Jamie when she’s fully able to drive again. Something economical, with good trunk space for the assistive technology she’ll be reliant on. I’m not good with cars or else I would start listing… I remember that the Honda Element was one of the cars discussed, but that’s about all I can think of for now. Here's a video (with bad sound) of everyone talking about Jamie driving... Sake is there too:
2) One of the biggest developments in the last few weeks is our new relationship with Advanced Arm Dynamics. We were introduced to Advanced Arm Dynamics (AAD) through one of our new doctors, Dr. Sharma. Dr. Sharma is a hand doctor, like Dr. Boutros. (Interesting note, Dr. Sharma was partnered with the plastic surgeon who, on December 6, recommended that we amputate Jamie’s arms at the wrist and her legs above or at the knee… he isn’t partnered with that doctor anymore). Dr. Sharma is wonderful and is happy with the work performed by Dr. Boutros. He isn’t planning on too many more surgical procedures on Jamie, if any, in the future. OK, there will be some, but nothing too extensive. Also, we’re glad to be with him because he is so close and has this good relationship with AAD. So, I missed all of the early appointments with Dr. Sharma, so I can’t tell you too much about what went on there, but at one of those meetings, he recommended that we look at AAD… then he set up a meeting with one of AAD’s reps, who was driving down from Dallas. Well, we were BLOWN AWAY by the things we were shown by Bernie, the rep for AAD. Bernie, as you can tell in the videos, is an amputee; he became an amputee after being a victim of a random drive-by shooting. His hand was messed up badly… he showed us pictures of it. Here's some video from that meeting:
As you’ll see on the video, the technology that AAD is developing is amazing. AAD is the only company in the country (world?) that works exclusively on upper extremity prosthetics , and they have the results to prove it. The demo model that he showed to me, mom, Jamie and two other amputees that were in the same meeting is representative of the kind of prosthetic Jamie will be outfitted with. The prosthetic will consist of a glove or a socket that Jamie’s hand will fit into. On the inside of the glove will be electronic sensors. These sensors will sense when Jamie’s arm/hand muscles move and will move individual fingers according to those motions. There are two sensors per finger – one contracts the finger, the other releases it. It is pretty damn amazing. Because Jamie’s hands aren’t uniformly shaped, there may be some fingers that this doesn’t apply to (Note: last Monday, at the AAD mothership in Irving, they told Jamie exactly that. So, on some of her fingers, she will have the sensors/individual fingers and then, on the fingers were there is less available bone, there is an extremely new technology that is in place that would require some pins to be inserted where the finger would be, and then a prosthetic is put on that finger, and then you rely on electronic sensors to move the finger… as you can see, I barely know what is going on with this yet,… but I will…. Sometime soon. (Btw, that picture is from Jamie's PTOT session following our meeting with Bernie.... he came to St. David's and talked with Bob and Kerry about what they could offer for Jamie. Getting advice from our trainers has proven invaluable, because they know the right questions to ask and they can tell help nudge us in the right direction).
3) On Saturday, we will all be going to Austin City Limits (along with the rest of civilized society, apparently), but we’ll be going in style! (for a few reasons) First, Aaron Behrens, the lead singer in Ghostland Observatory that came to visit Jamie in the hospital at St. Davids, offered to give Jamie the same side-stage treatment that we received in July at the New Braunsfels show. Aaron and Thomas, the other member of the band who also visited, have been so great to Jamie… really, some of the best moments we have had following Jamie’s illness have been brought by these two guys (and by Cater and Becky, who really connected us with the Ghostland boys). So, we’ll also be cruising in style because Jamie will be driving a scooter that was originally gifted to us by Tommie Leon, a friend of Jamie’s from high school. That will be pretty cool. Also joining us backstage will be Roni, because she was given all-access passes because the group behind ACL selected Roni’s T-Shrit design as one of the official ACL shirts this year!!! Very exciting news, and very cool that she got backstage passes for her work. Good job Roni!
4) It is Jamie’s 21st birthday on Sunday! We are so grateful that Jamie is still around to celebrate this landmark occasion. It was almost a year ago that we very nearly lost her. Things could have been much worse for her and for us, so considering all of the things that didn’t happen to Jamie, I’m very happy. We love her so much and she continues to make such amazing progress. :)
Finally, we had a great weekend in Dallas to celebrate Yom Kippur (the Jewish day of atonement) with the family. It was Jamie’s first road trip since she, Michelle and I drove from Houston to Austin in May. It was great to see everyone. Jamie visited Shelton, her old school, and some of her old friends, including the Applebaums. There were some people that Jamie wasn’t able to visit (Prescott’s, we’re looking at you!) but Jamie is planning on several more trips in the near future, with Halloween looking to be the next trip. Thanks for all of your support and we’ll talk to you soon!
Thursday, September 24, 2009
9/25 - Tailgating with the Happy Hook-ers
Jamie had a good time at the tailgate too. This, I think, was the first major public event that Jamie had attended with her prosthetics on and while she was walking around. She didn’t have her wheelchair at all. Definitely the first time for that! What’s neat was that once the tailgate got going, she lost some inhibitions and she started to walk a few steps here or there without support from the walker or from anyone! That was amazing to see. And it was seen by a lot of her Silva brethren – Nicole (nee Silva) and Stephen Lahti; Zeke and Marc Silva (they’re brothers, FYI); Cindy, Joe and Chris Martinez; Letty and Ramon Fernandez (mom’s/our cousins), and we, the Schanbaums… so, when you think about it, I guess there weren’t too many “Silvas” there… but still it was a good time. And we can't forget about Jamie's friends that showed up, like Molly and Michelle and Jeff... also some of my friends showed up too, which is nice... thanks.